Laura Loves Languages

A place for many opinions

Capital Challenge Walk 2010

CCW-LexIt’s CCW week and we are all busy bees getting ready for the 50K. I’ll be walking for two days and cannot wait to get started!

A lot has changed since last year at this time when we were Challenge Walk and MS newbies. After the two years since diagnosis, Lexi has amazed us in her utter strength in the face of this horrible and unpredictable disease. I have sat with her often in the last year when she suffered pain that I wished I could take from her. It was as if she were still that baby that I would hold close to me when she had colic or when she was a young child growing that six-foot wing span.
This spring, we went to Florida for Mother’s Day and the hot sun that we have always loved was both our joy and our enemy. MS does not do heat. Making her way from the street to the beach took every bit of strength we all had- her Dad, Lexi and me. One side of her body completely stiffened and flat refused to go forward. Little by little we made our way, the end result being the cooling emerald green waters where she moved and glided with total freedom. I can still feel my joy that day to see her splashing and enjoying the movement of the water. We stayed in the ocean as long as we could. When finally we had to get out, it was really hard for her to stand up again. Lexi really did not want to accept help from a stranger, but he was right there and so nice to her. He pretended to be showing off his strength to some women he’d met at the beach and helped lift Lex right out of the water. We all applauded his chivalry. People are so nice sometimes, another lesson we learn all the time these days because of MS. Lexi’s sister, Angela and brother-in-law Dennis have fund-raised tirelessly. They walked in Washington Walk MS and went back to NYC and did Walk MS there. Angela has made websites and designed marketing pieces that rival the work of any agency in an effort to make a difference. She is tenacious and uses her endless creativity and talents to lead us on the team. All the motivation comes from the same place. We cannot sit by and do nothing. The whole family is united in the fight, my own Mom, Marie, my stepfather Paul, my brother, sister, their families are all supporting us. We are very blessed.

Talking about the kindness of people, MS is BS will reach our $15,000 goal for the National MS Society this year, more than we raised in our inaugural year and hopefully less than we’ll do next year. A gifted artist from across the country donated his entire inventory of wearable art which we sold at craft fairs and markets. Painters and photographers donated paintings and pictures, a potter gave us pots and candlesticks . Renowned musicians donated their time in concerts and team members baked cakes. We were the winning charity for a Chef’s challenge won by our friends at Maple Ave…….Friends and family just gave and gave. Colleagues at work and longtime friends gave. We definitely feel the love from our spectacular team, the National MS Society, and all the folks we’ve met on other teams. We all support each other and that’s what CCW is all about.
If you are reading this post, check out our web presence at msisbs.org. Please keep all who have to deal with MS in any way in your thoughts and prayers. Two days, 50K closer to a cure.

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September 23, 2010 Posted by | MS Awareness | Leave a comment